Jaxx wrote:I still wonder if PFS and PSSD are not different (even though they have major similarities), looking at what has cured people in the past. I must admit i dont know the PFS community in great detail, but a large amount of PFS cures seem to be about progesterone or other hormonal protocols.
For PSSD these cures are almost always with drug or supplement with serotonin or dopamine. I havent seen any PSSD cures (or even major relief) with the hormonal route.
But i am very curious to see if the survey will tell us more. What is blurring the discussion a bit is that not everyone here actually has this issue from an SSRI, but from other type of medication, supplements or even hormones.
These "cures" can rarely be reproduced by any meaningful number of people. I don't think they can tell us much. They can often be attributed to natural recoveries (many people recover/improve naturally within the first weeks/months irregardless of any "protocols), placebo effect, very mild symptoms or they are simply fake.
If there were reliable treatments for those with significant symptoms, I think we would know.
With regard to the last point, we are specifically asking for the substance. We know that many substances, including natural supplements, can cause these symptoms. This is exactly the point we are trying to make: There is no Post-Finasteride, Post-SSRI or Post-Accutane syndrome. This is a syndrome that can be caused by all substances that have anti-androgenic properties. We even have people who crashed their androgen levels through extreme diet forms that have this syndrome. Everything that results in a (sharp) decrease in intra-cellular androgen levels can cause persistent symptoms in predisposed men and women.
Going one step further: We even have people who crashed after using aromatase inhibitors and who have a similar syndrome presumably associated with changes at the level of the estrogen receptors.
This topic is much broader than most realise. It's not only about Finasteride or ADs, it's about endocrine disruption as a whole.