List of currently recruiting studies

This is a place to post research you have done on the topic along with your conclusions.
glennchan
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Joined: Sun Jun 04, 2023 1:37 pm
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List of currently recruiting studies

Unread post by glennchan »

Queen's research project.
- See Reddit thread. https://www.reddit.com/r/PSSD/comments/ ... ject_2023/
- Join via the Qualtrics survey. https://queensu.qualtrics.com/jfe/form/ ... T2XJij1yZg

David Healy recruiting for 2023 CCM project (CCM is a test for small fiber neuropathy)
- See https://rxisk.org/pssd-patients-needed- ... stigation/

If you have 23andMe data, consider sending a copy to PSSD Lab's Genome Project.

See the subreddit r/PSSD for current information on PSSD studies that are recruiting. https://pssdlab.wordpress.com/pssd-genome-project/
  • 1- Report the Adverse Drug Reaction to your country's Pharmacovigilance Agency (you'll find it easily on Google). It is recommended that you sign with your full name and do not leave the report anonymous so that it will be given more consideration.

    2- Fill in the RxISK report here: the data collected has already resulted in several publications.

    3- To fill in a questionnaire on PSSD and be part of a possible sample of patients for future studies by Prof. Roberto C. Melcangi who works at the University of Milan, you can ask for the questionnaire at his email address: roberto.melcangi@unimi.it

    4- German study on female PSSD from the University of Witten/Herdecke (German language required).

    5- [2023!] Research questionnaire of the University of Rome Tor Vergata (ENDOSEX). Read here.

    6- [2023!] Queen's University Sexual Health Research Lab questionnaire, see here.

    7- The University of Iowa research questionnaire is still open for participation: https://redcap.link/PSSD. The first data have already been published in this paper.
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