PSSD Prognosis

General discussions. Feel free to use this like a support group also.
Leb89
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Re: PSSD Prognosis

Unread post by Leb89 »

HereToHeal wrote: Mon Aug 10, 2020 11:26 pm
Leb89 wrote: Mon Aug 10, 2020 7:25 pm I met three people in my hometown who recovered completely. I believe People recover much more often.
How did they recover?
Was time a factor?
They all healed within time. They tried supplying in the beginning and because it didn’t work they stopped and healed with time.
Leb89
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Re: PSSD Prognosis

Unread post by Leb89 »

Trazohell wrote: Tue Aug 11, 2020 1:02 am
Leb89 wrote: Mon Aug 10, 2020 7:25 pm I met three people in my hometown who recovered completely. I believe People recover much more often.
No, most stay damaged if you would read the stories.
All these "cured" cases with St. Johns, Inosit etc. are people that would have healed in time anyway.
Furthermore, nobody knows what damage they really had. Severe physical symptoms lke pelvic/prostate pain, no reaction to meds or drugs like benzos/alcohol?
Such people with real PSSD/PFS are the long-term cases.
There are definitely chronic cases and I don’t want to downplay that. I consider myself severe at the moment too. But shouting out estimated statistics about healing and not healing is just not well-founded. This is the internet and if I get to know three people in the real world who recovered completely within time that shows off a completely different picture. I just want to share that to give people hope the same way I try to give it to myself.

Though I can imagine how much you are suffering Trazo. Don’t get me wrong, I hope you can get better sooner or later. I hope that for everybody of us.
Trazohell
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Joined: Fri Jan 26, 2018 11:46 am

Re: PSSD Prognosis

Unread post by Trazohell »

Leb89 wrote: Tue Aug 11, 2020 5:39 am
Trazohell wrote: Tue Aug 11, 2020 1:02 am
Leb89 wrote: Mon Aug 10, 2020 7:25 pm I met three people in my hometown who recovered completely. I believe People recover much more often.
No, most stay damaged if you would read the stories.
All these "cured" cases with St. Johns, Inosit etc. are people that would have healed in time anyway.
Furthermore, nobody knows what damage they really had. Severe physical symptoms lke pelvic/prostate pain, no reaction to meds or drugs like benzos/alcohol?
Such people with real PSSD/PFS are the long-term cases.
There are definitely chronic cases and I don’t want to downplay that. I consider myself severe at the moment too. But shouting out estimated statistics about healing and not healing is just not well-founded. This is the internet and if I get to know three people in the real world who recovered completely within time that shows off a completely different picture. I just want to share that to give people hope the same way I try to give it to myself.

Though I can imagine how much you are suffering Trazo. Don’t get me wrong, I hope you can get better sooner or later. I hope that for everybody of us.
Thanks, but maybe you can give us some more infos about these people :')))
(medications, doses, time on it, supplements or natural recovery ...)
June 2015 - April 2016 Fluoxetine
April 2016 - March 2017 Fluvoxamine
December 2017 9 days Trazodone
After Trazodone PSSD: loss of libido & spontaneous/night/morning erections, prostate/pelvic pain, genital numbness, lower sperm count, Anhedonia
Leb89
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Re: PSSD Prognosis

Unread post by Leb89 »

The three people were former patients of my actual therapist. They all took SSRIs. I don’t know the exact drugs. But they all had the typical symptoms of anhedonia, libido loss and ED. They were all male. They recovered completely within 3, 6 and 12 months. They all took supplements and cialis in the beginning. But it didn’t help, so they decided to wait. The first two recovered gradually. The third one who was the worst case recovered over night. He just woke up and the libido was switched on again. I know you may argument that they probably didn’t even have „real“ PSSD. I don’t know how they reacted to drugs and alcohol or else, but I know that their symptoms have resolved completely. I hope this story maybe can let someone see a little light. Stay strong guys!
Benji19912
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Re: PSSD Prognosis

Unread post by Benji19912 »

Trazohell wrote: Tue Aug 11, 2020 1:02 am
Leb89 wrote: Mon Aug 10, 2020 7:25 pm I met three people in my hometown who recovered completely. I believe People recover much more often.
No, most stay damaged if you would read the stories.
All these "cured" cases with St. Johns, Inosit etc. are people that would have healed in time anyway.
Furthermore, nobody knows what damage they really had. Severe physical symptoms lke pelvic/prostate pain, no reaction to meds or drugs like benzos/alcohol?
Such people with real PSSD/PFS are the long-term cases.
why do they not react to benzo or alcohol, what’s the issue in the brain?
Trazohell
Posts: 215
Joined: Fri Jan 26, 2018 11:46 am

Re: PSSD Prognosis

Unread post by Trazohell »

Benji19912 wrote: Thu Aug 13, 2020 3:59 pm
Trazohell wrote: Tue Aug 11, 2020 1:02 am
Leb89 wrote: Mon Aug 10, 2020 7:25 pm I met three people in my hometown who recovered completely. I believe People recover much more often.
No, most stay damaged if you would read the stories.
All these "cured" cases with St. Johns, Inosit etc. are people that would have healed in time anyway.
Furthermore, nobody knows what damage they really had. Severe physical symptoms lke pelvic/prostate pain, no reaction to meds or drugs like benzos/alcohol?
Such people with real PSSD/PFS are the long-term cases.
why do they not react to benzo or alcohol, what’s the issue in the brain?
Probably something wrong with GABA or sertonin receptors.
June 2015 - April 2016 Fluoxetine
April 2016 - March 2017 Fluvoxamine
December 2017 9 days Trazodone
After Trazodone PSSD: loss of libido & spontaneous/night/morning erections, prostate/pelvic pain, genital numbness, lower sperm count, Anhedonia
Naczoz
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Joined: Fri Sep 18, 2020 4:37 pm
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Re: PSSD Prognosis

Unread post by Naczoz »

Got one question.

Do you guys think healing from pssd is possible or its most likely temporary?
scept
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Re: PSSD Prognosis

Unread post by scept »

Naczoz wrote: Fri Sep 25, 2020 10:42 am Got one question.

Do you guys think healing from pssd is possible or its most likely temporary?

I think it's definitely possible. The body is an incredible thing, it's amazing what it can do. Since June I have made big improvements, and they are only getting better.
Naczoz
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Re: PSSD Prognosis

Unread post by Naczoz »

for how long do you have pssd?
arahant
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Re: PSSD Prognosis

Unread post by arahant »

scept wrote: Fri Sep 25, 2020 2:22 pm
Naczoz wrote: Fri Sep 25, 2020 10:42 am Got one question.

Do you guys think healing from pssd is possible or its most likely temporary?

I think it's definitely possible. The body is an incredible thing, it's amazing what it can do. Since June I have made big improvements, and they are only getting better.
After many years, I share the same experience. They are only getting better too.
Keep in mind that there's no magic pill/combo that you take and wait.
You need to address every symptom gently, but also negative thoughts, ruminations, and despair can be helped with psychotherapy.
Having friends, family, partners outside internet forums is quite important too.
Wellbutrin (2007 - 2018)
Wellbutrin + Sertraline (2015)
Wellbutrin + Ritalin (2016 - 2018)
Wellbutrin + Ritalin + Sertraline (3 months in 2018)
Buspirone (Feb 2019 - Today)
Ritalin + Buspirone (Nov 2019 - today)
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