UK PSSD legal action

[Juvo]

One thing that really concerns me is I cannot get erect at all, to any degree, when standing up, whereas I can when sitting/lying. To me that feels like a spinal cord thing.

This is more than likely a blood flow issue. If it were spinal, you'd probably not get erect in any position.

[Juvo]

One thing that really concerns me is I cannot get erect at all, to any degree, when standing up, whereas I can when sitting/lying. To me that feels like a spinal cord thing.

This is more than likely a blood flow issue. If it were spinal, you'd probably not get erect in any position.

Lost soul...go get a penile doppler done to confirm adequate blood flowage

[lost_soul]

One thing that really concerns me is I cannot get erect at all, to any degree, when standing up, whereas I can when sitting/lying. To me that feels like a spinal cord thing.

This is more than likely a blood flow issue. If it were spinal, you'd probably not get erect in any position.

But it's still from ssris somehow, I didn't have that problem before at all and I don't have any conditions like diabetes etc

This sounds crazy but I am thinking of going to some pharma hq in England and trying to talk to them, I don't know could anything positive come from that?

I know lots of people here think I have lifestyle factors contributing to dysfunction but no, not really... I know people far unhealthier 18-40 and none of them have these problems (not that I've asked but they have relationships and all fine so I don't think so)

[suedehead]

Maybe there is a 4th one. The person I told you about stopped his long term escitalopram (he had some SD on it though), then reinstated, this is when his reaction happened.
So maybe 4. After reinstatement/kindling?

Mine is the 1st without doubts. But based on the existence of 3rd scenario and the temporary relieves for some, I believe more in the receptor downregulation/activation theories or in a very serious/hormon alteration theories in brain (so a serious functional issue rather then destroyed nerve cells). But I'm not an expert unfortunately, I have only hope in the studies and Ghost's work.

I can say that I am no. 4. Was on sertraline for one year, tried reinstating sertraline but had suicidal thoughts/insomnia and I may have noticed some numbness. Doctor then gave me Prozac and 10 days into this had full penile anaesthesia. But... within 4 weeks I was close to full function again. 10 months later glans became numb along with lower libido and unfortunately numbness returned from taking 5htp for around 2 weeks a year after initial pssd. Anhedonia and body numbness followed shortly and nothing much has changed. I only started reading up on pssd after the 5htp. If I had known that there are reports of pssd from this I would never have taken it. Libido was fading away to an extent anyway at that point. Hope one day the answer to this mystery is solved.

[lost_soul]

Hi, I made a post on the subreddit about the NHS and PSSD freedom of information requests ... it would be great if people could take a look at it and get in contact with the NHS about this trying to find some answers, especially the London Queens Neurology Department as one of their consultants told me electrostimulation could potentially REVERSE pssd, yet still the NHS officially has no records about PSSD - how is that possible? They know full well about it, I don't know if the electrostimulation thing was meant seriously or if she was just trying to get me to calm down and fuck off.

And no I don't think my more severe ED standing up is a bloodflow thing. I've looked up the symptoms of poor circulation, I don't have any.

I just don't understand. If it's neurological, why do I still get proper highs off drugs, if it's hormonal, why do I still have the same muscle mass, no gyno or anything? That leaves nerve damage or spinal damage. Which is what Dr Healy thinks. There is no return, we have been dropped into Hell, lives forever stolen and they won't even acknowledge it. FUCK THEM. DO YOU HAVE ANY IDEA WHAT IT'S LIKE HAVING TO LIVE LIKE THIS AT 21. THIS SHIT KILLS MARRIAGES at 60, 70. 21. TWENTY ONE AND I CANNOT HAVE SEX, I CANNOT WANT IT, I CAN'T EVEN FEEL LOVE PROPERLY, DO YOU UNDERSTAND YOU'VE MADE ME A DEAD MAN WALKING

[sjv16477]

Hi, I made a post on the subreddit about the NHS and PSSD freedom of information requests ... it would be great if people could take a look at it and get in contact with the NHS about this trying to find some answers, especially the London Queens Neurology Department as one of their consultants told me electrostimulation could potentially REVERSE pssd, yet still the NHS officially has no records about PSSD - how is that possible? They know full well about it, I don't know if the electrostimulation thing was meant seriously or if she was just trying to get me to calm down and fuck off.

And no I don't think my more severe ED standing up is a bloodflow thing. I've looked up the symptoms of poor circulation, I don't have any.

I just don't understand. If it's neurological, why do I still get proper highs off drugs, if it's hormonal, why do I still have the same muscle mass, no gyno or anything? That leaves nerve damage or spinal damage. Which is what Dr Healy thinks. There is no return, we have been dropped into Hell, lives forever stolen and they won't even acknowledge it. FUCK THEM. DO YOU HAVE ANY IDEA WHAT IT'S LIKE HAVING TO LIVE LIKE THIS AT 21. THIS SHIT KILLS MARRIAGES at 60, 70. 21. TWENTY ONE AND I CANNOT HAVE SEX, I CANNOT WANT IT, I CAN'T EVEN FEEL LOVE PROPERLY, DO YOU UNDERSTAND YOU'VE MADE ME A DEAD MAN WALKING

What about this technique of electrostimulation?

[Juvo]

Hi, I made a post on the subreddit about the NHS and PSSD freedom of information requests ... it would be great if people could take a look at it and get in contact with the NHS about this trying to find some answers, especially the London Queens Neurology Department as one of their consultants told me electrostimulation could potentially REVERSE pssd, yet still the NHS officially has no records about PSSD - how is that possible? They know full well about it, I don't know if the electrostimulation thing was meant seriously or if she was just trying to get me to calm down and fuck off.

And no I don't think my more severe ED standing up is a bloodflow thing. I've looked up the symptoms of poor circulation, I don't have any.

I just don't understand. If it's neurological, why do I still get proper highs off drugs, if it's hormonal, why do I still have the same muscle mass, no gyno or anything? That leaves nerve damage or spinal damage. Which is what Dr Healy thinks. There is no return, we have been dropped into Hell, lives forever stolen and they won't even acknowledge it. FUCK THEM. DO YOU HAVE ANY IDEA WHAT IT'S LIKE HAVING TO LIVE LIKE THIS AT 21. THIS SHIT KILLS MARRIAGES at 60, 70. 21. TWENTY ONE AND I CANNOT HAVE SEX, I CANNOT WANT IT, I CAN'T EVEN FEEL LOVE PROPERLY, DO YOU UNDERSTAND YOU'VE MADE ME A DEAD MAN WALKING

You're over simplifying what it is. Come up with a logical conclusion on why you can't get a standing erection and it being as the result of spinal injury and I'll gladly hear it. You think your spine cares wether you are standing or laying down for your erections? Its probably because your laying erections are on the weak side so standing makes them appear even weaker. If you can get decent erections laying down, at least rule out blood flow with a doppler test.

[sylv]

Electrostimulation is just their new, innocent sounding term for the electroconvulsive therapy. There was a long debate on the subject. If the product have a bad reputation -rebrand it - known marketing technique

Seeing and listening to some doctors so eager to cure seemingly unknown disorder of a extremely complex organ just by flowing the current though billion neurns in frontal lobe, without any kind of research or probably just believing the usual " Ohh, he is just depressed" make me shiver. Nothing to say besides that for a guy with hammer - everything looks like a nail

[jaiho]

Electrostimulation is actually very different to ECT.
They uses very low constant currents to assist in the firing of neurons. There's also magnetic stimulation, vagus nerve stimulation, and DBS.

[Bigmum]

Nothing to say besides that for a guy with hammer - everything looks like a nail

True!!!