Here's what you can learn from Long COVID and vax injured patients

Post any data on Treatments and experimentation.
glennchan
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Here's what you can learn from Long COVID and vax injured patients

Unread post by glennchan »

Reposted from https://forum.sickandabandoned.com/t/fo ... aulers/134
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Hi, I collect survey data and published RCT on what works for treating COVID vaccine injury and Long COVID. The two most important compilations of data are here:

Overview of RCT and survey data https://odysee.com/@LongHaulWiki:2/data ... ber-2022:d

What worked for 27 people who recovered (3LC, 24 vax injured) https://odysee.com/@LongHaulWiki:2/What ... Feb-2023:d

Top treatments
These treatments alleviate symptoms with very low risk:
  • Pacing strategies

    Gluten free diet, low histamine diet (in people with severe food intolerances/allergies)

    Magnesium???

    Here are other treatments, most of which seem to deal with the root cause and help people recover. However, while many of them may be very safe in health people, they HAVE RISK in long haulers:

    Iv3rmectin

    HCQ

    Fasting for more than 2 days

    black seed oil from nigella sativa

    HBOT

    Statins
For safety information that you won’t find elsewhere, see these slides for the protocol video - https://longhaulwiki.com/resources/asse ... col-v1.pdf . It’s important that you understand that these treatments have risk in long haulers.

Which of those treatments might do something for PSSD?
First we have to look at what does and doesn’t overlap between PSSD and long haul.

Genital numbness and sexual dysfunction aren’t commonly reported in long haulers. That doesn’t seem to overlap. I suspect that long haul treatments won’t touch that stuff.

Things that seem to overlap are the low/moderate rates of:

Derealization / depersonalization

Visual snow syndrome

Other symptoms that I haven’t thought of because I’m not that familiar with PSSD. For a list of Long COVID symptoms, see this list: https://patientresearchcovid19.com/reso ... searchers/ Parts of it are wildly inaccurate (diarrhea is way, way off) but it’s a good resource.

For these overlapping symptoms, maybe the long haul treatments might work???

Medical experimentation
Right now the only way to find out is to do medical experimentation. I guess we all learned about the perils of medical experimentation the hard way. However, some of the long haul treatments are exceptionally safe in healthy people- specifically pacing strategies and the supermarket food black seed oil.

Please don’t do anything crazy.

Please be aware that response rates are very low (if the treatments even work in the first place). Treatment is very very difficult.

Capturing treatment outcomes
I’ll try to capture data on treatment outcomes on things that people have tried. Keep your eyes peeled for a future survey. I would need help with recruitment though… these surveys don’t work very well if the sample size is too small.
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