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Integra
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Joined: Wed Dec 08, 2021 1:50 pm
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Unread post by Integra »

Hi guys, i'm writting to guests, who are reading pssdforum, but don't write anything here. We need u, guys. We need your stories, we need your words, your help. Every story is important for all of us. Thanks.
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anacleta
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Unread post by anacleta »

I agree and would add: if PSSD has been outlined it is thanks to those who have stood out in the past, those who have spoken out, reported, explained their symptoms, reporting them to pharmacovigilance agencies, to Rxisk.org, and on forums like this one! Now unfortunately there is still a long way to go, and it is time for you to do your part. There are researchers who pay attention to the stories in communities like this one. Is it possible that we are a thousand users? So is it really that rare? If you have PSSD, sign up! Participate or at least leave testimony that this misfortune has also affected you. It is important to have true and clear stories, not false and confused ones. The more we show we are, the more researchers we can involve.
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