Invitation to survey on personal experience with PSSD

[Astudt]

Hello,
I am reaching out from The University of Iowa Hospital and Clinics' new PSSD research team. We would like to learn more about the symptoms, precipitating medications, and potential medical therapies for PSSD. Our goals include better characterizing the impact that PSSD has on the individual and bringing awareness of this condition to the medical community. We would like to invite individuals with PSSD to complete the short IRB-approved survey. Permission to share this survey was obtained prior to posting.

Survey: https://redcap.link/PSSD

Please feel free to reach out with questions or comments. I will be happy to answer any questions or comments on this thread, through private messages, and via email at Alaina-studt@uiowa.edu

Thank you for your time,
Alaina Studt
Medical student
University of Iowa Hospitals and Clinics
Alaina-studt@uiowa.edu

[arahant]

I have answered it a few weeks ago.
Thanks for the initiative.

[Markc1113]

Yes thank you again. We have had several on here take the survey. I hope others get on and do it as well.

[JP1985]

Completed the survey, how many have done it in total now?
Thanks
John

[dandelion5]

Weird to me that you want a signature. No thanks, hard pass.

[arahant]

Weird to me that you want a signature. No thanks, hard pass.

That's usually an institutional review board (IRB) requirement. Especially in the USA.
It is also a bioethics requirement, then you are informed of the scope of the study and how the data will be used.
Volunteers must provide their written consent when participating in any research which involves their medical condition.

[Astudt]

Weird to me that you want a signature. No thanks, hard pass.

The signature is required by the Internal Review Board (IRB) as someone mentioned below. It is not shared with anyone. It remains in the database which is behind the University of Iowa's firewall and has strong restrictions on who is allowed to access any part of the data collected from studies. The signature is so that we know you have read the consent form as it is important that everyone knows the research is voluntary. I completely understand if you wish to not provide a signature. Privacy is important. If you ever have questions or concerns please feel free to reach out.

[Astudt]

Completed the survey, how many have done it in total now?
Thanks
John

So far about 160 have responded! we are very excited. Thank you to everyone who has completed the survey!

[JLo22]

I had completed it too. Not sure why more people did not jump on it. Of course you need a signature and who cares?