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Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Mon Jun 21, 2021 6:09 am
by Frog
Please also send this link to your MPs and anyone else who might listen!

https://professionals.issm.info/events/ ... sfunction/

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Sat Aug 28, 2021 1:49 pm
by Frog
Hi guys,

All going well I’ll be meeting with my MP next month face to face. I’m going to push for a debate in the U.K. parliament as well as questions to the health department on what they plan to do regarding research and treatment for PSSD and other post drug syndromes.

If you are from the U.K. and haven’t already, please contact your MP and let me know their name. A cross party collaboration could be extremely beneficial and the more names we have the better!

Please let me know when you do this and if you have any questions. There’s a letter template on the forum and on the Rxisk post “the politics of PSSD”. All you have to do is make it specific to your case. It shouldn’t take longer than 10 minutes.

Please get involved, you have nothing to lose!

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Fri Sep 03, 2021 1:24 pm
by climb
Hi everyone,

My MP wrote to the department of health and social care.
I got an unsatisfactory response from them but they know about our association.
I've contacted him today copied to Frog's MP to ask him to work with others to form a group to debate this in parliament. I'm going to call him next week to follow it up.

If you're in contact with your MP, please do the same!
If not, following the instructions Frog referred to above to do it.

We have to make this happen otherwise it'll just be more of the same excuses. Let's be brave, take responsibility and not take no for an answer.

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Fri Sep 03, 2021 1:32 pm
by JLo22
Thank you Climb

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Fri Oct 21, 2022 1:15 pm
by Frog
For anyone who’s interested, caught up with my MP today for the first time in quite some time. Went through progress so far and showed him some of the correspondences that others of you have had with various individuals. He’s going to let me know what he decides to do but likely to include some questions to ministers and hopefully discussions with the shadow health secretary.

I emphasised how the recognition is better but still no where near where it needs to be and the fact there’s no treatment or specific research into PSSD pathology (including anhedonia, brain fog and worsening through other drugs).

If anyone has any useful correspondences, please do send them my way and I can add them to the file. Please also contact your MPs and ask them to talk to Steve McCabe. The more names we can add, the better. Even if you’ve done it already please do again.

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Sat Oct 22, 2022 3:44 pm
by omar90
I met with the team of my local mp in south London after the daily mail article was published. They are interested in following it up, possibly with a question in the commons. I'd recommend anyone in the UK to visit their mp and show them the daily mail article. We should encourage them to work together if they are interested in helping us

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Sat Oct 22, 2022 5:58 pm
by Frog
omar90 wrote: Sat Oct 22, 2022 3:44 pm I met with the team of my local mp in south London after the daily mail article was published. They are interested in following it up, possibly with a question in the commons. I'd recommend anyone in the UK to visit their mp and show them the daily mail article. We should encourage them to work together if they are interested in helping us
Indeed! Go armed with reputable articles and research to back your case!

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Sat Oct 29, 2022 3:27 pm
by Frog
Frog wrote: Fri Oct 21, 2022 1:15 pm For anyone who’s interested, caught up with my MP today for the first time in quite some time. Went through progress so far and showed him some of the correspondences that others of you have had with various individuals. He’s going to let me know what he decides to do but likely to include some questions to ministers and hopefully discussions with the shadow health secretary.

I emphasised how the recognition is better but still no where near where it needs to be and the fact there’s no treatment or specific research into PSSD pathology (including anhedonia, brain fog and worsening through other drugs).

If anyone has any useful correspondences, please do send them my way and I can add them to the file. Please also contact your MPs and ask them to talk to Steve McCabe. The more names we can add, the better. Even if you’ve done it already please do again.
Another reminder for UK sufferers. Please let me know by posting to the thread or DM who your MP is when you’ve contacted them so I have a full list for a potential collaboration

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Thu Nov 03, 2022 5:48 pm
by Frog
6 MPs contacted so far since we restarted this including my own. There are 650 constituencies in the UK so let’s get as many as possible. If your MP is in the cabinet or shadow cabinet then there’s even more reason to do this

Re: UK MEMBERS, DO YOUR PART, GET INVOLVED!!!

Posted: Sat Nov 26, 2022 11:04 am
by Frog
Recent response to Steve’s question. This is why we need more MPs to push this collectively. If you contact them please let me know. This needs careful communication. If you’re from the UK and haven’t done this very simple and free thing I have to question why

https://questions-statements.parliament ... 1-21/92076