Idea: Literary contest on pssd

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anacleta
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Idea: Literary contest on pssd

Unread post by anacleta »

This would not only attract people to the topic, and encourage some of them to inform themselves in depth, but would even encourage them to make the effort to empathise with pssd sufferers.
Mini-literary competition on pssd (on the occasion of a particular day, e.g. world health day 7 april)

- opening of a Facebook page + email address and advertising of the competition poster on social networks (groups of writers in particular) with links

- participation open to all, free of charge, by communicating participation with name and surname to the email address

- once a certain number of (presumed) participants has been reached, the confirmation of the competition is communicated. this step can be skipped if a good number of participants is expected (at least a few dozen?)

- everyone can start writing the story to be sent within the deadline of about 3 months.

- the text (2-3 pages) must communicate in a realistic and emotional way the process of a person who takes ssri/snri antidepressants, suspends them and has pssd, with all the consequences that this has on his/her life in its various aspects. it is forbidden to talk about cures and names of treatments for pssd.

- a range of sources (literature and articles) is provided for writers to inform and inspire themselves.

- the stories will all be published (anonymously if requested) on the fb page or on a website on the day of the special day.

- approximately 10 days will be allowed before the winner is announced.

- the winner will be decided by the person who put his or her name on the contest design or by who is decided. the prize could be as little as $150-200.
it would be a somewhat informal competition, but it would need a real person to present it with a name and face.

What do you think? Is it feasible?
climb
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Re: Idea: Literary contest on pssd

Unread post by climb »

Hi Anacleta

It's a good idea.
I've attempted to get the interest of several journalists recently but haven't had much luck. It could be timing.

I wonder if it would be an idea to contact a forum for journalism students or freelance journalists to see if they'd be interested in writing something about PSSD?

The other thing I meant to mention is that some medical and academic journals publish patient feedback. One of our PFS friends from the federation has written an excellent article that will be published in the BMJ. This is something we can also aim for.
anacleta
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Re: Idea: Literary contest on pssd

Unread post by anacleta »

on reflection, it is not a good idea to have "invented pssd stories", even if written for a contest.
arahant
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Re: Idea: Literary contest on pssd

Unread post by arahant »

anacleta wrote: Fri Jan 01, 2021 6:38 am on reflection, it is not a good idea to have "invented pssd stories", even if written for a contest.
It makes a lot of sense. Self reports on internet forums are seen by any researcher as at maximum an anecdote, with lots of confirmation biases. Put things in perspective, around 100 million of SSRIs are prescribed every year in the USA. Prozac was the most prescribed drug on the following years of its approval, "invented stories" or "exaggerated ones", like a novel, for creating some "awareness" would destroy completely any reputation or reliability of the PSSD community.
Wellbutrin (2007 - 2018)
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climb
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Re: Idea: Literary contest on pssd

Unread post by climb »

anacleta wrote: Fri Jan 01, 2021 6:38 am on reflection, it is not a good idea to have "invented pssd stories", even if written for a contest.
Sorry, I misunderstood the original post. Invented stories is not a good idea, but factual reporting on the subject by impartial but empathetic aspiring journalists could potentially be good I think.
Broken
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Re: Idea: Literary contest on pssd

Unread post by Broken »

Rather than a writing contest, why not invite patients suffering from PSSD to express their symptoms through text or another medium?

Something like an art exhibit would be nice, yet those suffering are too sparse and far away to make a cohesive installation.

We should look to the efforts of other communities and see how they raise awareness for their plights. The NAMES AIDS quilt project would be a good example, as it showed the scope and gravity of infection while underlining the complete lack of recognition by the government.

Since PSSD affects us all in certain ways, I think we may have to demonstrate our woes by equally unique or appropriate measures. A parody of a pharmaceutical marketing advert could be eye-opening and informative while not being conspiratorial or alarmist.
2010~2012: Prozac, Concerta, Wellbutrin (no effects)
2012~2018: Effexor with 150 mg being typical dose. Weaned off March, reinstatement in June, abrupt cessation in September.
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anacleta
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Re: Idea: Literary contest on pssd

Unread post by anacleta »

Broken wrote: Mon Jan 11, 2021 2:59 pm why not invite patients suffering from PSSD to express their symptoms through text or another medium?
yes, that's exactly what some of us are trying to push for, to get a good number of PSSD stories and then to be helped by some non-profits to disseminate these stories on Rare Disease Day (28 February). read here: https://www.pssdforum.org/viewtopic.php?f=10&t=4188

I notice that it is not easy for many people with pssd, cognitive dysfunction and emotional numbness, but the first stories are starting to arrive, please write your own!

here are some:

https://pssd-uk.medium.com/antidepressa ... f5c62dace2 Ben
https://medium.com/@marc.reinsdorfer/ho ... 965cfcf92d Marc
https://www.rarediseaseday.org/stories/6959 Antonio
https://www.rarediseaseday.org/stories/6955 Emily
https://www.rarediseaseday.org/stories/6944 James
https://www.rarediseaseday.org/stories/6936 Lora
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