Hi, it would be great if you'd be able to send me some links/articles that I could translate in the future! There's so much to go over so having somewhere to begin would help a lot.anacleta wrote: ↑Sun Nov 15, 2020 2:36 pm Hi, I'm trying to give you some advice, which is what I've been doing since 2014, the first year I had PSSD. I opened a free and advertisement free blog where I translated the articles about PSSD from Rxisk.org into my own language, obviously indicating the original sources. I put together medical literature on PSSD since then, articles in online magazines, added a contact form inviting people with PSSD to get in touch, in order to expand a group on whatsapp.
Other: to contact people with PSSD through medical consultation sites; to disseminate on social networks.
I think this is a good point to start from: when there will be a good number of people it will also become a good idea to set up an association, create a dedicated website etc.
If you need help on which material to translate into your language to create a Dutch website or blog I can help you with many links, I have a clear picture of the situation in this regard.
I am also available to provide these links quickly to anyone else who wants to create more awareness and information in their own language, for which there is currently little material online.
You mention starting off with a blog and expanding by creating a website later on. I don't think it would be that big of a deal if I'd create a website first, right? I was thinking of maybe creating a site first with just some basic information on PSSD/SSRI's and linking to 'Lareb' (organisation here) in an attempt to encourage people to report their experience to Lareb if they find that they've got PSSD-like symptoms as well. I feel like a site would be better at presenting this kind of information as it's more static if that makes any sense. If needed, I could always make a blog and link it on the website and vice versa. But let me know how you envision it! And I was wondering if you have a link to your site as well, I'm curious to see how you did it. (-:
That's a good idea as well! Thanks. (-: What makes you prefer using Discord over any other platform for a group like this?chemistry wrote: ↑Sun Nov 15, 2020 3:14 pm Hi,
You could also start a Dutch group where yourself and other Dutch pssd sufferers band together to raise awareness and contact medical professionals/organizations in the Netherland. This is what Emily and others including myself have done (we have a Canadian Discord group, PM me if youre canadian and want to join) we have been making lots of progress this way