How can this theory make sense either sfp or gut dysbiosis if so many here have crashed to a miserable state from serotonin receptor agonists like st John's wort among others. it just doesn't make sense to me. Myself had mild pssd but after 4 pills of sjw I'm so bad now. Does someone else see this?...

Why did kostakonkordia reply to me “I’ll stand by with you too brother” or something to the effect get deleted too??? That’s two posts from me (which by the way are never attacking anyone they are always straight up informative and that’s been my history on all forums) and now his post was deleted. ...

I think this thread is based on what the OP thinks it is coupled with autoimmunity / immune system related.

Hey guys two of my posts got deleted on this thread for no reason wtf?? Anyway I was supporting CD saying how there are indeed members who bought into the epigenetic theory and we all know treatment for that, if true, is beyond years away and most likely won’t be for our condition. I have two friend...

Thats pretty easy to figure out. Potent tnf-a inhibitors or corticosteroids should give us a window. I think you could also measure certain cytokines but noone did that in these communities because everyone was focused on "epigenetic changes" and 5AR / receptor theory which is total BS im...

I think it’s crucial to somehow find out if there is still an active autoimmune process. We could stop the damage and give all of us the best chance of recovery if true. Many things suggest that there may still be an ongoing reaction. I just don’t know the next steps to take. Thats pretty easy to f...

I think it’s crucial to somehow find out if there is still an active autoimmune process. We could stop the damage and give all of us the best chance of recovery if true. Many things suggest that there may still be an ongoing reaction. I just don’t know the next steps to take.

Yup I completely agree with everything except that it’s very well known that many pssd suffers do suffer from these other weird symptoms. I mean I know guys who have taken massive massive doses of steroids with no effects. What the autoimmune reaction is against, who knows. Maybe it’s the androgen r...

In my case, no. I would recommend that you get the following tests done independent of the neurologists who might be able to perform the small fiber biopsy. https://neuropathycommons.org/sites/default/files/Tests%20for%20SFN%20causes%2005-24-19.pdf Also, with regards to the theory of downstream iss...

Janie, would you please list your symptoms outside of sexual dysfunction, from most apparent to least? I'd really appreciate this. Hey real quick do the professionals you converse with believe there is a possibility the immune reaction is still ongoing thus causing symptoms? This would be best case...