Let’s collect data on what’s happening to PSSD/PFS patients even if you aren’t experimenting on yourself. I’ve collected data on other chronic illnesses (over 573 responses) and that has generated useful data regarding risky and promising treatments. Please help me do the same for PSSD. SURVEY LINK:...

https://www.facebook.com/groups/374389668427208/

One good thing about Facebook is that it's a way to reach more PSSD sufferers out there. (Though there's censorship and maybe some other issues.)

Click this link for a video summary of the results. https://www.youtube.com/watch?v=IfeEIWorozg

see reddit for the full post explaining possible relevance to PSSD: https://www.reddit.com/r/PSSD/comments/ ... ax_injury/

The old Wikipedia page for PSSD is here: https://en.wikipedia.org/w/index.php?title=Post-SSRI_sexual_dysfunction&oldid=1150073490 The current situation is that the page has been deleted and redirects to the SSRI article, where PSSD is just a stub. The editor who won the Wikipedia war doesn't see...

Hey do you have any interest in getting Ghost's GWAS study (Genome project) completed? It can be a really cost effective way to do research when you have: A- Somebody with a track record of PSSD advocacy, so there's a reason to trust the researcher. B- Ghost works for free, so the money spent will r...

https://forum.sickandabandoned.com/t/german-gpcr-auto-antibody-study-on-the-vax-injured-semmler-et-al/313/2 Semmler and colleagues (DOI:10.20944/preprints202309.0113.v1) argue that vax injured persons can be distinguished from vaccinated individuals based on: Higher levels of the cytokine IL-6 (or ...

A number of us have been trying to engage with the patient safety commissioner recently, so following this up with a barrage on twitter and other methods would be good. I'll try my best to encourage everyone to participate. I haven't been following that situation closely but... the patient safety c...

For Med Safety Week, we can hijack the hashtag to raise awareness about med side effects and the terrible care that patients receive. The UK safety commissioner (@PSCommissioner) did keep tabs on the patient-led #MedSafetyWeek campaign (she followed me on Twitter) so they are listening. In the end, ...

IVIG, or IntraVenous ImmunoGlobulins, is an immunomodulating therapy that has been used experimentally for various chronic illnesses such as Long COVID, post-vax, ME/CFS, and PSSD. There are patients, researchers, and clinicians that advocate for IVIG as a treatment for various chronic illnesses. H...

Goldenhour survey results:
https://www.reddit.com/r/PSSD/comments/ ... y_results/


Symptom overlap analysis:
https://forum.sickandabandoned.com/t/so ... st-vax/254