The old Wikipedia page for PSSD is here: https://en.wikipedia.org/w/index.php?title=Post-SSRI_sexual_dysfunction&oldid=1150073490 The current situation is that the page has been deleted and redirects to the SSRI article, where PSSD is just a stub. The editor who won the Wikipedia war doesn't see...

Hey do you have any interest in getting Ghost's GWAS study (Genome project) completed? It can be a really cost effective way to do research when you have: A- Somebody with a track record of PSSD advocacy, so there's a reason to trust the researcher. B- Ghost works for free, so the money spent will r...

https://forum.sickandabandoned.com/t/german-gpcr-auto-antibody-study-on-the-vax-injured-semmler-et-al/313/2 Semmler and colleagues (DOI:10.20944/preprints202309.0113.v1) argue that vax injured persons can be distinguished from vaccinated individuals based on: Higher levels of the cytokine IL-6 (or ...

A number of us have been trying to engage with the patient safety commissioner recently, so following this up with a barrage on twitter and other methods would be good. I'll try my best to encourage everyone to participate. I haven't been following that situation closely but... the patient safety c...

For Med Safety Week, we can hijack the hashtag to raise awareness about med side effects and the terrible care that patients receive. The UK safety commissioner (@PSCommissioner) did keep tabs on the patient-led #MedSafetyWeek campaign (she followed me on Twitter) so they are listening. In the end, ...

IVIG, or IntraVenous ImmunoGlobulins, is an immunomodulating therapy that has been used experimentally for various chronic illnesses such as Long COVID, post-vax, ME/CFS, and PSSD. There are patients, researchers, and clinicians that advocate for IVIG as a treatment for various chronic illnesses. H...

Goldenhour survey results:
https://www.reddit.com/r/PSSD/comments/ ... y_results/


Symptom overlap analysis:
https://forum.sickandabandoned.com/t/so ... st-vax/254

The idea is simple: let’s use our social media profile pictures to raise awareness about the sick and abandoned. Whether it’s from Long COVID or SSRIs, I want to see chronic illness patients band together to raise awareness about what’s happening. Our illnesses are real and we deserve access to heal...

Reposted from https://forum.sickandabandoned.com/t/for-pssd-sufferers-heres-what-you-can-learn-from-long-haulers/134 ---- Hi, I collect survey data and published RCT on what works for treating COVID vaccine injury and Long COVID. The two most important compilations of data are here: Overview of RCT ...

Thanks!! I forgot about that site. I never really figured out how to use that site... like what does it think is effective for PSSD?

However, there's some useful stuff on there like the popularity of treatments.