Search found 51 matches

by bigpoppa10040
Wed May 04, 2022 10:34 pm
Forum: Speculations and hypotheses
Topic: If you have urinary symptoms...
Replies: 24
Views: 16743

Re: If you have urinary symptoms...

Bro, please reach out to me here with a DM, or text or whatever. There’s many many people who think like us that I’ve contacted and been in contact with. Couldn’t agree more with you. It’s sad cause we are losing people and it doesn’t have to be this way.
by bigpoppa10040
Wed May 04, 2022 10:22 pm
Forum: Speculations and hypotheses
Topic: If you have urinary symptoms...
Replies: 24
Views: 16743

Re: If you have urinary symptoms...

I agree. Don’t quote me brotha. Also,I don’t think it’s toxicity because there are plenty of people who report everything going back to completely normal off of the drug and then crashing a week, 2 weeks, 1 month later. Crazy. It’s the innate immune system kicking in. I’ve treated patients with sero...
by bigpoppa10040
Wed May 04, 2022 10:16 pm
Forum: Speculations and hypotheses
Topic: If you have urinary symptoms...
Replies: 24
Views: 16743

Re: If you have urinary symptoms...

I totally agree with you. It’s no doubt related to neuropathy. I don’t think it’s a classic neuropathy case as not everyone has instances of decreased small fibers. PFS organization did a study in penile skin and found no evidence of decreased nerve density I believe.
by bigpoppa10040
Thu Apr 28, 2022 4:46 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 48952

Re: PSSD could be small fiber polyneuropathy

Also PFS did a study on penile tissue and found no SFN which is interesting
by bigpoppa10040
Thu Apr 28, 2022 4:32 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 48952

Re: PSSD could be small fiber polyneuropathy

Hey all - so I kind of stopped posting here because I don't think the majority of people on this forum want to be productive. They are so fixated on finding a supplement to magically and suddenly reverse their condition, and the PFS lobby is really trying to wrap our condition up with theirs and fo...
by bigpoppa10040
Wed Apr 27, 2022 9:43 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 48952

Re: It is 100% small fiber polyneuropathy

KJP21 wrote: Sat Jan 08, 2022 10:44 pm 1. Get the biopsies. If all or most of us show polyneuropathy, this objectively arms us to get recourse from pharm.

2. Get the full autoimmune panel to rule out any active response.

3. Small fibers can regenerate overtime if the underlying cause is alleviated.

Did you see flexstars results
by bigpoppa10040
Tue Apr 26, 2022 4:40 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 48952

Re: PSSD could be small fiber polyneuropathy

I had a full immunology and nerve study as my doctors initially suspected MS, GBS, CIDP etc. All tests were negative. Full head to toe MRIs, no structural changes or inflammation. I am seeing Dr Victor Chong, top neurologist in southern hemisphere when it comes to autoimmune neuro diseases. My symp...
by bigpoppa10040
Sun Apr 24, 2022 6:36 pm
Forum: Treatments and experimentation
Topic: PSSD proven to be autoimmun related!?
Replies: 28
Views: 5628

Re: PSSD proven to be autoimmun related!?

flexstar13 wrote: Sun Apr 24, 2022 5:20 pm I did not suffer from depression but chronic back pain. That’s what I got cymbalta for!
Reached out to u on Reddit.
by bigpoppa10040
Sun Apr 24, 2022 9:26 am
Forum: Treatments and experimentation
Topic: PSSD proven to be autoimmun related!?
Replies: 28
Views: 5628

Re: PSSD proven to be autoimmun related!?

Well I think this could be a unique form of SFN. Your results indicate an active immune reaction. I would assume based off people who experience windows that if we stop the reaction we could feel so much better or cured. Shit, an immune response to nerves throughout your brain and body can easily ca...
by bigpoppa10040
Sun Apr 24, 2022 12:11 am
Forum: Treatments and experimentation
Topic: PSSD proven to be autoimmun related!?
Replies: 28
Views: 5628

Re: PSSD proven to be autoimmun related!?

OMMMMMMGGGG this is incredible. These antibodies can cause the equivalent of small fiber neuropathy I believe. Stop the reaction, restore us back to normal. Omg bro