Search found 35 matches

by Kiliantkt
Mon Jan 11, 2021 5:38 am
Forum: PSSD related research
Topic: Looking for Dutch people
Replies: 5
Views: 1859

Re: Looking for Dutch people

Will fill it thanks ! I'm from Switzerland, can I still do it ?
by Kiliantkt
Tue Jan 05, 2021 3:19 pm
Forum: General
Topic: IMPORTANT: MHRA requesting patient feedback about PAS as part of Expert Review - PARTICIPATE
Replies: 2
Views: 762

Re: IMPORTANT: MHRA requesting patient feedback about PAS as part of Expert Review - PARTICIPATE

I took accutane but like 15-17 years ago and have no idea if this could be linked with my PSSD now. Problems only started 20 months ago after 9 years of ADs.
by Kiliantkt
Mon Jan 04, 2021 5:49 pm
Forum: General
Topic: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
Replies: 15
Views: 2944

Re: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day

I wrote down my story. Could anyone who is a native English speaker correct it? It’s not too long. I want to take part in this. Please guys let’s work together. I am sick of this condition without any future outlook for a serious research and treatment. Thanks a lot for writing down your story, thi...
by Kiliantkt
Sun Jan 03, 2021 6:27 am
Forum: PSSD related research
Topic: PSSD in 2021 | Melcangi Study Info, Future Research and Activism
Replies: 24
Views: 23438

Re: PSSD in 2021 | Melcangi Study Info, Future Research and Activism

Awesome posts, thanks for everything, looking forward to be able to help !!
by Kiliantkt
Fri Jan 01, 2021 6:09 pm
Forum: General
Topic: Which medical examens should I do ?
Replies: 7
Views: 1744

Re: Which medical examens should I do ?

Thank you very much ! Did you do some of these examens yourself ? You're from Paris I guess ? Je suis de Genève, j'ai fait quelques tests de mon côté. Tu as facebook ? On pourrait s'échanger des infos, je suis sur plusieurs groupes PSSD aussi etc ;) Je suis de marseille, et je me deplace à paris to...
by Kiliantkt
Fri Jan 01, 2021 1:43 pm
Forum: General
Topic: Which medical examens should I do ?
Replies: 7
Views: 1744

Re: Which medical examens should I do ?

TheParisian55 wrote: Thu Dec 31, 2020 4:45 pm Thank you very much ! Did you do some of these examens yourself ?
You're from Paris I guess ? Je suis de Genève, j'ai fait quelques tests de mon côté. Tu as facebook ? On pourrait s'échanger des infos, je suis sur plusieurs groupes PSSD aussi etc ;)
by Kiliantkt
Tue Dec 29, 2020 3:14 am
Forum: Treatments and experimentation
Topic: Tribulus Terrestris for libido issues - PSSD
Replies: 7
Views: 2232

Re: Tribulus Terrestris for libido issues - PSSD

T.T did help my erection temporarily. But then fades.
by Kiliantkt
Sat Dec 26, 2020 2:11 pm
Forum: PSSD related research
Topic: Fundraising for research Prof. Roberto Cosimo Melcangi
Replies: 46
Views: 10603

Re: Fundraising for research Prof. Roberto Cosimo Melcangi

It’s showing anonymous now which is great, it showed my first and last name at first, not sure if it was a glitch or something or if the organiser of the fundraiser or someone managed to change it. Anyway it’s all good now! I’ll possibly donate more at a later date depending on a few things, I’ve a...
by Kiliantkt
Sat Dec 26, 2020 2:08 pm
Forum: General
Topic: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
Replies: 15
Views: 2944

Re: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day

Thanks this is awesome, appreciate! I have a twitter account, don't really use it but could re-tweet everything you guys do, like I already did a bit in the past. Will create a Medium account. Will try to prepare something regarding my story even though english isn't my native language so it makes i...